Long Time, No Blog

Well, what's to write? Days turn into weeks, that turn into months, and we just keep paddling and waiting. What we're waiting for nobody wants to know, but we wait and time passes.

I did take Mom to see the dress rehearsal of "Fiddler on the Roof" that Devri performed in this March. Mom has passed the point that she can sit still through an entire show, so we went to rehearsal, instead. When Devri was on stage Mom was very attentive. When she exited, each time, Mom decided to leave. So, in those small intervals when Devri was not performing, we walked. We walked around the auditorium. We walked back and forth in the foyer, again and again and again and again. We walked every row of chairs starting at the top and zig-zagging all the way down to the bottom and made the return trip from bottom to top. When Devri came back on stage we sat and watched, and when she danced with the Rabbi, Mom even laughed. Otherwise, though, she timed her exits to perfect synchronization with Devri's.

The following Friday, Christine took Dad up to watch the performance and I stayed with Mom. When I first mentioned the idea of Dad going without Mom, he was stunned that I would suggest it and then very depressed saying, "Don't you think Doris would want to go?" I told him I'd take her during rehearsal, but to think about it. "Mom might be ok, but you'll be a nervous wreck," I said. He responded with an "I guess that's so." So, he went with Christine and told Mom "goodbye" but I noticed he did not tell her he was going to watch Devri perform. He said, "I'm leaving for a while and I'll be right back." When he returned, he looked rejuvenated and like a very proud grandpa. It will be hard for him to learn to do things without Mom, but it must eventually happen. He cannot stop living because of this disease. But sometimes I think he wants to.

the good and the bad of it

The good side of Alzheimer's I have yet to see, but I am seeing plenty of the bad side. Mom no longer has any bowel control, and I don't say that as an insult because it's the Alzheimer's not Mom. She can't help it, of course. I think, "Maybe somebody reading this will have to go through this whole Alzheimer's experience, and they may as well know what they're in for. I'm not going to sugar-coat it." So, anyway....it's a bad deal, sure enough, and we're all doing things we have never done before and never really thought we could. It's kind of strange how you suddenly "can" do what you "must" do. It makes a person feel like they are stronger than they thought they ever were, somehow. Anyway, I was dealing with the issue last week and thinking, "Oh, Lord, this is SO bad! I really may die right here and now!!" Then I got to thinking. If Mom was in a nursing center and this happened, there would be no way that a nurse could possibly leave the attention of 20 other people and attend just to her. She would just be there needing help, and have to wait until no telling how long for someone to care for her. And suddenly I was so thankful. Mom needed care immediately and she got it immediately, no problem. That is just such a blessing to be able to care for my Mom in any way, at the very moment she needs me.

Right in the middle of this mess I'm so thankful and happy I could cry! So, maybe that's the "good" of it---not what the disease is doing to Mom, but what it is doing to all of us.

the funeral

Dad's brother, Norman, passed away just before Christmas and the kids, Mom and Dad, and I drove up to Adrian, MO for the memorial service. We had a real time keeping Mom down for the 30 minute service. The family was separate from the general population and the girls and I, (and my two nieces), kept charge of Mom while my Dad and brother sat on the front of the family section. Happily, we had enough space where no one could notice her getting up and down and up and down every couple minutes, and we also had a back door and took her out twice for a walk "downtown" while the service continued. She no longer follows simple commands very well at all. My "sit down" went largely unheeded, but she had to push herself out of the arm chair to stand, so I kind of pushed her off balance a little so she couldn't get up every 5 seconds, (and I mean every five seconds.) Once I got distracted and didn't get her off-balance fast enough and she was already standing before I even knew it. I held her at bay, but thought, "Oh, boy..." and whispered to her, "Now, Mom....you don't want me to put you in one of my restraints I use at school do you?" She laughed. (I actually do work in a school where I sometimes have to use restraining moves.) Anyway, I had one arm and was wondering what I was going to do if she decided to walk up to the podium, when Christine grabbed Mom's other arm and in one smooth move, forced her to step back which made the chair hit her in the back of the knees, she lost balance and sat. Christine whispered, "Now that's how it's done." I stood amazed. That girl knows what she's doing. Anyway, we made it through the service. That afternoon at the internment, she wanted to walk all over the cemetery, but that was ok with us. Everybody kind of kept an eye open for her, (and I mean everyone)---the whole family was distracted making sure she didn't get away. I think Christine took her to see my brother's grave site, I'm not sure, and I don't know if she had a reaction or not. I don't even look towards that part of the cemetery. It gives me a headache.

Anyway, Dad will sure miss Norman. They talked to each other on the phone each and every day. Dad even said, "I don't know what I'm going to do with this cell phone now. I don't have anybody to call." That's so sad. Dad has lost four siblings thus far---two just this year.

Merry Christmas!

My kids would have it no other way than to spend the night at Mom and Dad's house to celebrate Christmas morning together. And they said there would be a tree. Of course, Dad said, "I'm not putting up no damned tree," and of course, he lost--kind of. Christmas Eve Eve Christine brought home a potted plant that looked quite like a Christmas tree, and the kids decked it out. Eric, Dev, and I packed our bags, (and our turkey, and our stuffing, and, and, and) like we were off for a big Christmas journey to visit our relatives. Forty minutes later we arrived.

We've pared down Christmas a lot in the last several years, mostly so Dad won't stress out over it. Gifts are completely optional and generally very practical. When Mom was doing things, Christmas-time was a major "to do," but not anymore. We still enjoy it, though.The kids gave Mom three of her favorite things....a new hat, chocolate pudding cups, and a card that sang, "I want a hippopotamus for Christmas" every time she opened it. Dad got a corresponding gift of decorative cotton balls with bows on them, to wear in his ears when she opens the card 1,000 times/day. haha Also, Christine bought Dad a new watch. When he was trying to set his old watch for daylight savings time this fall, he broke the stem off and could not reset it. So, he took the new watch and put it on his right wrist, leaving the old one on his left. He said in the spring he'll look at his right arm and in the fall, he'll look left to tell the time. Snort! I bought him new socks and underwear---try to do this every twenty years or so. He said, "I've been thinking about buying some of those....." He's been thinking about it for over ten years, no doubt.

We all enjoyed watching the kids open their stockings with the little presents and candy packed in tight, and it was done---perfect. I fixed the standard fare of turkey, hot rolls, dressing, etc, and it was a warm, cozy, and easy-going day we shared.

Mom is having more trouble eating and we no longer take her out to eat because it gets pretty messy. The biggest problem is she eats with her hands and will not leave the food in her mouth. The food is in and out and in and out, and not for the faint of stomach. We can deal with it, but we save the general population the experience! But, on the bright side, she is not choking!

I don't know if this will be the last Christmas with Mom, but if it is, it was a very fine one and I wouldn't have changed anything. We laughed a lot and Mom let go of her dead-pan stare and laughed along with us for the moment. It's always so sweet when she does that.

Can you write my name?

That was the question Chad asked Mom last time he saw her. She nodded, then wrote clearly, "Chadwick" and laughed.

the quilt blocks

(Photo #1 Mom brought a book of old postcards out of who-knows-where to show me. Photo #2 Dad surveys his kingdom.) Rummaging through bag after bag of fabric in the laundry room today, I happened across two sets of quilt blocks, many of them already sewn together. I knew that in past days Mom had worked on quilts with both my daughters and my two nieces, Liesel and Molly. It was a mystery to me just who these quilt tops belonged to, but so much work had gone into them already, I knew they needed to be done. I figured they were Liesel and Molly's because living so far away, they haven't had as much time to work with Mom as my girls. I asked Mom, "Whose are these?" and of course, was met with a stare. Then I had a thought. I wrote the names "Christine," "Devri," "Liesel," and "Molly," on a piece of paper and said, "Mom, can you point to the name of who these quilt tops belong to?"

She quickly nodded, "Yes."

I held one up. "What about this green one with the butterflies?" I asked.

She quickly pointed to "Christine."

Next I said, "Ok, what about this blue one with the pink swirley deals?"

Again, without hesitation, she pointed to, "Devri," and smiled.

I really had no idea if she really knew what she was doing, but I called Christine and said, "I found some unfinished quilt tops in the sewing room today.......do you know anything about them?"

"Oh, yeah," she answered, "The butterfly one is mine and the pink and blue one is Devri's."

BINGO- Mom was right. Made my day. I gave her 'lots of kisses.

Cinderella

Mom enjoyed seeing Devri dance in "Cinderella" last weekend. Unfortunately, there were two 10 minute intermissions and although I did walk with her each time, there is always a time of two or three minutes before the curtain opens and it was very difficult for her to stay seated during this time. She did point her out in the program as usual and looked over at Dad now and again with a big smile as if to say, "Did you see that? Isn't she great?" When it was over, it was over, though and she made a bee-line for the car. I began to think, "Hmmm.....I don't know how much longer I can manage her during performances....she wants to wander so much." But I have an idea of how to solve this problem. When she can no longer sit through a performance, we'll simply attend the dress rehearsal the evening before where she can watch and walk around at her leisure. And we'll pack some M&M's, too. I should have thought of this before!!